3 Myths Most Diabetics Still Believe

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The most common myths diabetics believe analyzed and explained. Portion control, storing insulin, and blood sugar control – things you should know.

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0:00 Myths that spread in the diabetes community
0:36 You need to eat an exact prescribed amount of carbohydrates and take an exact prescribed amount of insulin. Really?
1:43 Insulin needs to be stored in the fridge. Really?
3:03 My favourite click-and-go insulin cooling case VIVI cap
3:49 HbA1c below 7% is good enough. Really?
5:05 Different forms of HbA1c
5:35 Two important blood sugar control indicators other than HbA1c

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Disclaimer: I am not a medical professional and my videos are not medical advice. What works for me might not work for others. Please consult your medical professional regarding your diabetes treatment.

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23 COMMENTS

  1. I wanted to make this video for a long time because I see many inaccurate pieces of information spreading in the diabetes community all the time. I am doing my best to always debunk any myths I hear and I believe we all should. However, everyone has their own approach and diabetes management style and different things work for different people. I fully respect that! I hope this video was helpful!

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  2. I love this video! Over the past 40years of having diabetes I have always aimed to get better than my previous HBA1C. And yes it’s a daily, weekly & monthly management system. Tom, you are so good with these videos. Thank you so much for making people more aware. 🥰💕🇦🇺

  3. My HbA1c was 6.7 when i got checked at the beginning of my pregnancy, not the ideal but not overly bad. I spent a long while working out what insulins were best for me, a lot of trial and error and I've finally found the ones that work. Spent 3 years sat at 9 and just for the life of me couldn't get it down. New insulin was the best answer honestly. But just when I managed to finally get control over them and start getting it to an optimal place where its safest within the near future, I now have an unplanned pregnancy which just completely messed up my insulin management. T1D pregnancy around 3 1/2 months 4 months begins an insulin resistance, and my dose at the moment is 4x my usual carb dose. What once was 10:1 is now 10:4-5 depending on the type of carb. It really takes a toll on your physical and mental health when you are worrying 24/7 about your own blood management and at the same time having to worry about the baby, as high blood sugars over a long period can cause the baby harm. PSA: please any women here who are T1D who don't have children yet, make sure you don't get pregnant unplanned, if you are unaware of the impact it will have on your health and all the risks associated. It is mentally and physically taxing and makes you one of the most high risk pregnancies there can be. Plan it if you are able to. The only reason I am right now is because a doctor told me I was unable to conceive naturally and so I thought nothing of the unprotected. Threw me against a wall when I read about and got told all the risks to me AND the baby. So just be cautious if you want children, make sure you are well enough before hand and prepared for all the impacts it will have on you! Take care of yourselves <3

  4. I've been a "follower" (not like it's a cult) of Dr Bernstein for a long time. Sadly, I don't think he has a large following among the younger people because they are being told that they can eat "whatever they want" thanks to newer fast acting insulins and CGM's and pumps etc. Most people I recommend Dr Bernstein to reject his approach outright. Even when they are showing their rollercoaster ride CGM graphs after they try to prove that they can and should "eat just like everyone else". It's really sad that in this day and age people will end up blind when it was in fact preventable. Diabetics I believe should be routinely referred to psychologists to learn about behavioral modification and delayed gratification etc. If you are diabetic and still eating like a skinny healthy kid you do need to have your head examined. It's irresponsible to engage in self-destructive behavior especially when for you it is in fact a life and death situation. Many health conscious non-diabetics don't even eat donuts and pancakes and pizza and other CARBAGE anymore. It's a tough sell though because many people can never break free of the associations that developed in their minds when they were young. Donuts and pizza equals happiness and life without them is not something I'm willing to accept. As for me I'd rather live without CARBAGE than live without my vision! Thee end. Good luck to everyone with everything!!! As they say in the Army… you don't have to like it you just have to do it! Nobody regrets having taken good care of themselves but many come to regret not having taken better care of themselves.

  5. I eat over 400g carbs a day as a T1D. My A1Cs are always in the low 5s. It's achieved by eating extremely low fat (less than 15% of total calories). My insulin to carb ratio is about 20:1 eating high carb/low fat. When I used to eat low carb, my insulin to carb ratio was 5:1. So once you remove all the fat from your diet your body becomes very sensitive to insulin, allowing it to work really effectively, so you don't need very much. I'm also vegan, and eat whole foods like tons of fruit (bananas, blueberries, mangos, apples, oranges, etc), rice, potatoes, corn, all kinds of veggies, oatmeal, beans, grains, etc.

    I'm not saying people should not eat low carb. People should do whatever way of eating works for them. But I just wanted to point out that it's also a MYTH that you can't eat high carb if you are T1D. You absolutely can, if you eat very little fat, and still get great numbers!

  6. Hi back in 2014 when I was diagnosed with T2 I went total low carb and my primary Dr was so happy. She said the lower the carbs the better. Try and get your A1C down to 6.7 is our goal. I got it down to 6.9. fell off the wagon and ended up on a pump. Now my A1C is 7.1 and I'm shooting for a 6.5 when I go back. I try to stay in range of 95% to 100% all the time. I'm doing good at this. My Endo is very happy as of how the pump is working for me. I go back in May to have my A1C done again. My question is Is there a test I could ask my Endo to do on me to see if I am a T1D now?

  7. You don’t need any carbs in your diet, as you said ridiculous amounts of carbs means ridiculous amounts of insulin, which is all good for the pharmaceutical companies more money for them , if you cut out carbs altogether you wont need any fast acting insulin, just your bolus insulin in my case 70 units of trasiba once a day and no nova rapid unless I’m eating cards

  8. I really enjoy your content and find lots of useful information in it. But I would like to critique a few points here:

    Myth 1: an exact prescribed amount of carbs most likely isn't necessary. For example the German Diabetes Association simply prescribes a healthy mixed diet. But you shouldn't just brush away the health risks associated with a high protein/high fat diet. There is evidence out there that a high protein diet increases the risk of kindey damage/failure, just saying that it doesn't is completely unjustified without delivering evidence to the contrary. Same with high fat, there's the risk of arteriosclerosis, strokes, basically everything we try to avoid by properly managing our blood sugar.

    It is rather about the type of carbs you eat and how you handle it. One really effective tool for me is to properly time the injection beforehand (which obviously isn't always possible, but ofthen enough so that you don't need a low carb diet).

    Myth 3: This lacks a ton of nuance. While everyone should indeed strife towards the lowest value possible, there is one very very important caveat: possible to them. Some people simply don't have the capacity to manage their diabetes as well as others. For example people with wildly irregular daily schedules, people with mental issues, plainly inept people, people without access to CGM, and older folks (who for the most part don't even need to be that strict anyway, because moderately higher glucose deals damage slowly, over years and decades). Then there's the problem with hypos. If you need to endure lots of medium to heavy hypos in order to shave off enough of your HbA1c to get into that >5.7% territory, it is very well not worth it, as it is plainly dangerous in day to day life, even with CGM. Think of driving for example. Same thing if your job does not allow for a higher risk of hypos, for example if you're a roofer or a machinist. So while 6.9 is most likely too high for a mid-30s office worker, it might be the best achievable result for lots of other people, who might unnecessarily stress or even endanger themselves over this information.

    There are simple realities of life to consider and prescribing the same target value and strategy to everyone is plainly bad medical advice.

  9. I never had a HbA1c below 6.5. Then I got pregnant and my levels are now constantly between 5.0-5.5 with straight blood sugar curves. It is amazing what you can achieve when you are suddendly responsible for another human being inside you.

  10. My Hbac1 was 5.5 at previous check-up. I can't understand how 7 would be any 'good' your body does not care if your social security number and the word diabetes are on the same piece of paper. But it cares if your blood stream has glucose sludge going round and round damaging everything it touches.

  11. Hi Tom, I was diagnosed with T1D on 22nd December 2021. On the day of my diagnosis my HbA1c was 12.2%! After being discharged from hospital on 27th December, I sat down and read through Dr. Bernstein's 'Diabetes Solution' (and Dr. Runyan's 'Master Type 1 Diabetes', which I believe is another helpful resource to any person with T1D). On 28th February my HbA1c was tested again, and in two months I'd been able to reduce it from 12.2% to 5.9%. I attribute this to Dr. Bernstein and Dr. Runyan's books, and of course your Youtube channel. Your videos (especially those regarding Libre 2) have really helped me to better manage my blood sugar levels, so thank you. At present, my Libre 2 predicts that my current HbA1c is 5.3%, which I am very happy with. My average time in target (target is 4.0mmol/l – 7.8mmol/l) is 94%.

    Also, in regards to this video, 'Lie No. 1' really hits home. Upon diagnosis my endo told me to inject 10 units of Novorapid before each meal, and told me that I could continue to eat high-carb meals. My blood sugar levels ricocheted from very high to very low as a result – not good. Thanks for bringing the VIVI cap to my attention too, it's exactly what I've been looking for.

    All the best and keep up the good work. I really appreciate your work – you cannot begin to imagine how much your work has helped me out since my diagnosis.

  12. I still remember when I was first diagnosed and had to go to a nutritionist. I told her that I was going to go low carb, and she gasped and told me it would destroy my kidneys (it doesn't) and that I needed to eat at least 100 carbs a day or my brain would literally die (it won't). Even then I knew she was full of it and regarded her expertise as completely worthless. I've been eating a very low carb diet for 14 years now and I'm not brain damaged and my kidneys look great. My endo now has no problems with my being very low carb and says I have the best Dexcom lines he's ever seen.

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